Difficult day

Today started strangely with a call from neurophysiology department at st Luke's. They need to repeat archsters EEG due to needing more information when he is still. We are booked in on Tuesday at 2.30 for a 2 hour slot. Poor love he hated having it done yesterday and now he has to go through it again. I might shave his hair off in prep although that is going to be a mammoth task/trauma for him in itself. He's had a lot of drop attacks today, holding his breath at the same time. Also twitching right side of his face frequently. He's developed some unusual behaviours which may be seizures including shrugging his shoulders, shivering and pushing his tongue under his bottom lip. I've cried a lot today! Hubby blames last nights red wine but I feel I'm struggling to cope. Archsters getting heavy now and it's becoming more effortful carrying him about. Professor levene is visiting tomorrow for our court case. He's going to assess archster and write a report based on his findings. Worry!!!