My son archster was born prematurely following a car accident. He had nait (neonatal alloimmune thrombocytopenia) which meant he had dangerously low platelets. As a result archster sustained significant intracranial haemorrhaging. He is 2 1/2 now and has developmental delay, epilepsy, cerebral palsy and a visual impairment.
Saturday, 28 January 2012
Professor levene
Well, professor levene came today. He's a lovely man and handily lives just up the road. He was very positive about archsters future. Said he could see no sign of cerebral palsy in his legs therefore would walk. He has diagnosed him with spastic monoplegia due to the increased tone in his right arm. He feels that with regular physio and ot this will improve but never be 'normal'. He diagnosed him with cortical visual impairment which is difficulty making sense of his visual input. His advice was to declutter his environment as much as possible. He also diagnosed him with hemianopia which is no vision in the right side of both eyes. To increase his chance of learning about the world, we are to present items to his left side. He has recommended a gentleman called professor dutton who is based in Glasgow and is an expert in cvi. I googled him and he has written some useful articles. Professor levene feels archster needs to see physio much more often and ot. He also recommends we insist on regular appointments with neurologist dr ferrie. The main aim is to get his epilepsy under control which at present, it is not. He would like to see archster in 2 years to see his progress and make a more accurate prognosis for his future. Hopefully we will win our case and be awarded enough money to pay privately for the best experts in epilepsy, cvi, physio and ot. Here's hoping!!
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